When I first began advocating for my son, I had no idea what I was doing. I knew my child needed more support than he was getting, but in the exhaustion of dealing with his medical conditions, I had little energy to research the best ways to advocate for him.
Your Child’s Voice is the book I wish I had when I was starting my patient advocacy journey. I wrote this book to share tips, tools and resources that I’ve learned along the way with parents and caregivers of children with special needs.
Raising a child with special needs can be challenging, frustrating, rewarding and isolating. In talking to other parents, I have found many of the issues and roadblocks my family has faced are common to others.
Your Child’s Voice contains practical tips to help parents and caregivers advocate for their children on areas including:
- Understanding your child’s needs
- Building your child’s medical team
- Getting a diagnosis
- Accessing support at school
- Navigating waitlists
- Dealing with roadblocks
- Finding the right therapy for your child
- Identifying your family’s needs
Your Child’s Voice not only contains practical advice from a parent living the patient advocacy journey, but also insights from medical professionals, teachers, as well as other parents who are fighting in the trenches for their children.
I hope by reading this book you also feel empowered and less alone in advocating for your child.